John's Celebration of Life Party (February 2005)
His urn is the silver thing on the table; the portrait was done by his art teacher, the photo is from his graduation. The "Broken Heart" flowers are the only funeral flowers I allowed. We had 8 dozen roses in two big vases, mixed colors. His art is in the foreground - one of his nudes. This one was displayed at the Gallery. People are viewing his condolence book my brother put together. We had emails sent from all over the world. They also viewed photo albums. I had a string of photos of his young life, framed and scattered along with a lot of his art. Two computers, his and mine, played slide shows of his progress through this nightmare. Dignity and grace.
Chuck at the Boy Scout table. Troop 534, Fremont CA arrived in class A uniforms to formally present John's Palm; he had the bronze palm award - an award above Eagle. It is pinned to his Eagle now. Unfinished business. He earned it but was too sick to pick it up. The open book at the bottom is John's Eagle trail - a collection of patches, badges and achievements.
For his young life, he had accomplished a lot. Imagine what he could have been if leukemia had not cut him down.
Photo from High School Graduation (June 1999)
Johnathan Wellington White
September 12, 1981 - February 25, 2005
Eagle Scout with a Palm
Multi-Media Artist, Photographer
Beloved Son and Brother
Of complications from too much Chemotheraphy and AML Leukemia
Never Forget
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JOHNATHAN WELLINGTON WHITE
- 2004 - 2005 - END OF THE WAR
AGAINST LEUKEMIA
Last Entry: July 20, 2005
Photo taken prior to First Stem-Cell (March, 2004)
Self-Portrait - Mom's new digital camera
This impish smile and his delight at new things is how I choose to remember my lovely son.
No More "One Size Chemo Fits All"
If anyone in your family or circle of friends gets diagnosed with cancer, you had better read this - there is a lifetime limit for chemo - and many, many doctors are pig-headed and don't listen to their patients or consult with other doctors on prior treatments.
If that is happening in your case - find another doctor!
They took away his ability to fight the Leukemia.
Not that there is a cure for AML. Just a short-time holding pattern.
We need a cure! We loose too many good people.
- Johnathan has relapsed with AML (leukemia) after the second transplant (done December 9th). He had one antibody treatment Jan 12th. Tuesday he was diagnosed with pneumonia - almost always fatal with neutropenic kids (no immune system). It turns out that he had one chemo treatment too many - from which he could not recover. (He did beat the pneumonia and was off the machines for 18 hours.) And in the end, AML bloomed. They said 0% chance of recovery. His heart, lung, kidneys and liver were failing. His directions are to "Fight" - so we did just that until it was hopeless - and several doctors said so. Multiple organ failure and incredible pain on the horizon. We need a better solution to this living hell.
- February 19, 2005 - John's Status February 19, 2005
- Feb 5, 2005 - Hospital - Every Science to the Front Line
- Reacting to Horror We have been told he is still relapsed and they have little left to offer -"take him home and let him die "January 8, 2005
- John - Running Out of Time January 4, 2005
- Rough Biopsy - Dropping Counts January 3, 2005
- OK - New Kitchen Wall January 2, 2005
Favorites - STORIES ABOUT MY KIDS
 Short Stories 2004
Short Stories 2003 and the Tacoma and Toyota Stories
Short Stories - 2002
Short Stories - 2001
Short Stories - June - December 2000
Stories - Sept - Dec 1999; Jan - June 2000
MASTER STORY LIST - EVERYTHING! Well - Almost -
NEEDS UPDATING
Leukemia - Through a Mother's Eyes - 7/00 - 4/02 ( Continued in other story lists)
Scattered Topics - Early Stories
Working Mother Stories - Early Ones
Adventures in Stalking Fabio
Cooking Adventures and Recipies |
