Rough Biopsy - Dropping Counts

      Then he reacted to another drug and they had him on demerol - just got home - 13 hours - back tomorrow for blood

      I've had to take days off - today for example - how do you work thru this?

      I hate it when he's in pain - I hate it when things do not go right

      He is so fragile. He's lost so much weight. Every cancer patient I have ever seen that loses this much weight - does not make it. They still cannot tell us why he cannot eat.

      I am so upset - we would know WHY his counts are 0.5 nearly 30 days post transplant as soon as tomorrow with the asperate
then we could address the next dire step

      new we have to wait because his marrow was "dry" and they had to do a bone biopsy - they drill in and scrape bone

      he screamed - SCREAMED

      and had to have a second platelettes transfusion (2 doctors)

      then he had the once a month stuff - IGHV or something - I forget
and he had Benedryl and tylenol - he hasn't reacted before

      well -- he did this time!

      he got up - went pee (after all that crap in the IVs - 2 platelettes - 2 saline - 1 casperfungen - a few misc and 1/2 the stuff ) I guess)
      went back to room - shaking - I grabbed a warm blanket - saw worse shaking - rang - got two nurses
      it became violent as they rammed in a steroid - they called it rigor - something like the anphoterisin espisodes - 2000
      then they fetched Demerol - oh John loves that stuff - his teeth were rattling
and restarted the IV again - and he started shaking again - so they gave him more       Demerol
      so he's OK
      He's trying to eat (not eating all day) - actually - I had grabbed a SCORE candy bar on the way out - well - good thing
      I bought soda and salad and coffe over the day but I needed SUGAR
      I ate 1/2 - he had the rest - some cider and the tops off muffins I had made him

      after the screaming session - my legs were shaking - I gave up going to work - it was 2PM
      That was a good decision as he would have been a real mess if I hadn't been there to ring for help

      oh well - TOP (time off)

      or no pay day - whatever~!!!!

      PLX said - run check to bank ----- try it - so I will send it to the CMA account tomorrow (I had held it so long)

      My tail bone hurts and if I put on my high heeled slippers - I trip on the rug
and I fell into the wall

      I need a DRINK!!!! and I think I will have one!!!!!

      (I needed Bourbon today - straight up!!!)

      I am taping the "Medium" TV show tonight (John likes it)

      runs against CSI Miami (we both like it)

      I am stubborn - I try to stay in routine