2000
| August 5, 2000 It is now Wednesday - and again, with the promise last night that he might be doing better, I came into the hospital, armed with ice cream and a lean cuisine, to find my son in a high fever, red rash from top to waist, in the tub and then out and hot hot hot. Turns out, they have discovered that he has nodules on his lungs - fungus. An opportunistic invasion - and it takes daily 2 hour infusions of drugs for 4-6 weeks to cure him. They need to do a biopsy - to which kind of fungus (determines how long the treatment is) and a biopsy of the rash - to figure out what it is. He doesn't want to be cut. He can't eat. He's lost 30 lbs. Ten more and he will have made his weight goal - but not the way you should do a diet. I had three doctors in - because I want answers. His fever has gone up and down - why didn't they check before for fungus? Xrays of his chest were negative - and would still be so. These things are scattered and small. Great news. Oh yes. Just what a mother wants to hear. Especially since I just came from my doctor who wants more film on my left breast - feels like scar tissue from the surgery -but. It's the but that kills you. They took film twice of this - wasn't that enough? Thanks but no thanks - I don't need anything else. So tomorrow, I deal with what to do about school, insurance, etc. because treatment is weeks of infusions. Even the chemo gets postponed. (They've already done the blast that kills 90% of the bad cells.) On top of all this, will take $3,000 to get the house in San Diego back together. Not counting the mess they made of the yard. And I take it they left the downstairs rug a total mess (it was new). I cannot spare the time to go see. Property management must earn their keep on this one. We hold the security deposit until we see what they get to pay. Still, here it comes again. I do have a new tenant - the house isn't going to be empty more than 5 days - so that is on the plus side. And the rent is higher - so the house will now carry its mortgage. Not its taxes, etc but the mortgage. That's one good thing. I am hoping he gets to stay enrolled in college and do his classes from the hospital until he can get to the campus. We are still hoping for the November Romantic Times Convention. It means he cannot come home. for some time however. Right now he is sleeping/dozing - and I am watching. Watching them hang bags and give him more medication. Watching for side effects. The kicker? I am already upset, already near hysteria - and the nurse came up with the idea that we ought to contact "Make a Wish" foundation. I went ballistic! Wrong move! Wrong woman to mention that to! Of course, in his more comfortable moments, he has asked if he could have a lap-dance if he was going to stay stuck in the hospital. Somehow I don't think that is what they had in mind. |
For information about this file or to report problems in its use email dewhite@best.com