2003 Story Set
| Date: October 22, 2003 I am still trying to breathe. I have been working on websites for three weeks. I have scanned in the media (almost all of it - I was interrupted) for www.mantasmedia.com - my younger son's artwork photographed for viewing. A project that has sat for months waiting for my time. Funny how I just found the time. I am still working on that website - nine more slides to scan and then fix the labels. And I also updated www.theNakedHousewife.com to use frames since I reviewed HTML 4. I also fixed the front-end (front page) of the www.FabioIFC.com website - which will move to frames eventually. In some form. The site is out of control. I am playing with a new design with a faster-loading front page and background art, etc. But it was important to list the personal appearances and the coats. And I still write stories. Of course. Which means I am adding to www.Donnamaie.com . And doing splits on that index page that grew out of proportion. But I was really wanged out of it when they decided that is bone marrow biopsy was "too complicated" and we had to go in to the hospital off-schedule. Turns out - they cured the cancer (3 1/2 years remission) but killed him by damaging his chromosomes. Acquired Monosomy 7 is what it is called and it is fatal. One chromosome is now missing (41 instead of 42). First you get weaker and weaker, and then need transfusions to live. They said that he wouldn't survive a bone marrow transplant. And that they couldn't tell us how long he could live before this deteriorated. They have no data. This was not supposed to happen. First you have to see that you keep breathing. That took a few days. I crawl into work or a big fat novel at these times. How in blazes do I look for work? The phone rings - with offers to be a tech writer at $75K That is not what I am. And that is not the salary that I want. So I keep looking. 112 manager positions were on HotJobs this week. That's a big turn-around. I can blindly look and submit. What else do you do? I am not a secretary. Then we had "the scary night at the hospital" last Wednesday. Washington Hospital in fact. So the next day, back in to Stanford we went. NOW they tell us that in talking to the adult bone marrow transplant people, they are not so aggressive in its treatment and he might be able to survive. Monosomy 7 in children is usually aggressive. My son has had it they think at least 2-3 years ALREADY! It is ambling along. So we are now scheduled for a bone marrow consult at Stanford proper. November 7th. I have a packet to go through and read. We have to have a talk with a social worker for an hour - evidently to see that he doesn't drink, smoke pot, do drugs. Well, we've had a few drinks. I tend to sip a bit to sleep. A drink a day keeps the doctor away I prefer my red wine, like my doctor wishes. In addition to lipitor. My older son kidnapped him for a weekend and tried to get him very drunk. My younger son never gets high. He's too big. He's the kind of drunk that would drink and drink and not feel it until his liver exploded. i.e., he should never drink! I dance at tables by glass number 2 and am hugging the toilet bowl by glass 3. He has been drawn (lots of blood) for a bone marrow search and match (slim chances but who knows) and has the bruises on his arms to prove it. He is part plain Indian. I buried myself in typing Hellsfire (15,000 words) and six science fiction short stories that I had written in 1993. I was studying short story writing at that time. I put the stories up on my website. My heart is still beating - I only hang up once in awhile. That missing beat. I did the BowFlex Sunday and need to do it today. I tend to want to curl up and sleep a lot. I've been thru shock, then anger, and am now into determination to find a solution. My son is continuing to go to school. I am helping him study C++. We are up to functions. |
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