Day 9 Post-Transplant

2004 Story Set

Date: Day 9 - April 3, 2004
      My son was retaining a lot of fluid last night - they are pumping it into him at a high rate to clear the metheldrexate - he's all puffy.
     
      In the daytime they give him Lasix? However that's spelled to make him pee a lot. He barely moves at night.
     
      He has one more go round with that drug (Metheldrexate is the one that required the portable pump the last chemo session).
     
      This is day 9
     
      He gets a lot of transfusions right now
     
      We are counting----
     
      By day 14 we should start to see something move
     
      Once his counts start coming up (and we know this worked) - he will get better
     
      They said his donor "did a good job - lots of cells"
     
      We can try to meet the donor after 1 year
     
      It will be a year before we know------
     
      I will be under sedation by then!
     
      This is very hard to watch
     
      He is a fighter but Jesus - they need a better way to cure this!

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