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Date: Oct 24, 2004
He ate the Hagen Das strawberry ice cream and 2/3rd of the ravioli - Lean Cusine - I will find a full bodied one.
It seemed to stay down a bit----
Then he threw up (a couple hours into Ampho)
They did not done premed - which I had already called them on - Twice!
I blew up.
The nurse was upset that I was mad---- ha! She has not heard the last of that one. I have since learned that the nursing staff in E Ground is sloppy and generally considered not up to par.
THEN she brought in ANOTHER drug -- for nausea which we refused. Once he's tossed it - he doesn't continued. He gags on the discharge and then the reaction. He could handle one or the other. Once he got premeds - which is Benedryl and Tylenol - he was OK.
She left the vomit in the room all night (I put it by the sink).
She also left the room without checking or changing the top sheets which he had hit - I changed the bed. And I took the fleece blanket I made him two stays back - a big sheet - he cuddles in it. I put an extra blanket on his bed. I washed and returned the fleece the next day.
The doctors need to be told to write the orders that the premeds are NOT at the nurses discretion and they are not to provide anti nausea unless patient requests it and then only Kitrel or kitel or however it's spelled
nothing else. One nurse did Adavan - which is a drug I had said he could not have - he reacts to it. Then another nurse did Compazine - which about gave him a seizure. And then this.
He asked me make mac and cheese with baby noodles (I did - he ate them the next day) - easier to throw up. (Actually - I give him high-sugar tea to wash them down with and they stay.)
Took 1 hour to get Sudafed - and yesterday when Deb asked for a bed change - they never came. She threw everything on the floor. It was there when I arrived - I took it out. The clothes drop had it's plastic at half-mast. Did not stop me.
The nurses are not washing their hands either - so Deb has a big sign on the door. I put a sign on the pole that says "Premed ampho" - and they are religiously doing it now (think a dr. left the note.) (one did!!! ME!)
And the urine was there when I left - they left off the "hat" and so now he just goes when he needs it and ignores them. They occasionally measure. Lax and sloppy.
There has certainly been a degradation from E1 and then F Ground. E1 - where we started this leg of the journey - was for pure bone/stem transplant patients.
They needed their bed back. Too bad! They checked him often and we had the routine. Not that there were not goofs but they were less serious. Just gave him blisters and required me to ride herd on the dressing changes of same.
And the doctors - since we are "Hemotology" - had to walk upstairs. Funny that - we don't see them any more often!
Then we went where we belonged - FGround. There they did not put meds in the room (So I had to stop changing the dressings on the blisters.) We had to request warm blankets (and stand there and watch them until they complied). We mastered that routine.
But then they had more critical care patients - so we were moved to E Ground. They first put us in a room that had, it turns out, negative air flow ( germs were pumping IN). So now we have ANOTHER room in E Ground - in the back.
Now - we can wait an hour for meds, infinity for other things but the dressings are done and I can fetch warm blankets.
It's a blessing that Deb is there in the daytime!
Today (October 26) I will check with the doctors before going to work - his counts hit 2.0 (not neutropinic) and he ate more noodles and cheese. I will boil eggs and fix egg and peaches this morning. He is due for a biopsy this week and I have to know what's next.
The counts have come up in a week from 0.1 to 2.0 and I want to know if that's OK and if he's doing well (on target). Want him home. His counts never climbed above 2.9 after the transplant.
Dear Lord!
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